By Lorraine Ansell It is a good question and I get it quite a lot. Mostly from well-meaning medical professionals including doctors, from friends, family and everyone in between. I even questioned it before it… Read More »Why bother with a diagnosis when there is no cure?”
By Holden Green Freelance Breaking News Reporter, The Daily HeraldData Journalism M.S. Student, Columbia University PART 2 This is part two of Holden Green’s conversation with Avery Roberts and Kelly Berger. Roberts and Berger, disability… Read More »Part 2: Don't Take No for an Answer: Resilience Lessons from Two CMD Advocates
By Holden Green Freelance Breaking News Reporter, The Daily HeraldData Journalism M.S. Student, Columbia University PART I Holden Green spoke with Avery Roberts and Kelly Berger in late August 2025. Roberts and Berger, disability advocates… Read More »Part 1: Don't Take No for an Answer: Resilience Lessons from Two CMD Advocates
By Angela Bierman “How are you?” is a loaded question when you’re chronically ill. The social script expects a cheerful “great, and you?”—but that’s usually a fib or a mask. Well-meaning friends and family might… Read More »No, I'm not better yet: Navigating Well-Meaning Friends and Family
In order to integrate knowledge, creativity, or emotional processing, your brain needs this kind of real, unstructured rest. Issue #4 from Patient Power Collective, a bi-weekly newsletter and community created for patients, caregivers, and families naviga
By Adrienne Farrell I used to think courage looked like having it all together. I’d watch people move through the world with such ease—their homes spotless, their careers on track, their smiles unforced—and assume I… Read More »Showing Up Imperfectly Well